Love and incomprehensibility: The hermeneutic labour of caring for and understanding a loved one with psychosis

Journal article

Luderowski, Ana and Boden, Zoë VR (2019). Love and incomprehensibility: The hermeneutic labour of caring for and understanding a loved one with psychosis. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. 24 (6), pp. 737-754. https://doi.org/10.1177/1363459319829189
AuthorsLuderowski, Ana and Boden, Zoë VR
AbstractInformal carers are increasingly involved in supporting people with severe and enduring mental health problems, and carers’ perceptions impact the wellbeing of both parties. However, there is little research on how carers actually make sense of what their loved one is experiencing. Ten carers were interviewed about how they understood a loved one’s psychosis. Data were analysed using a hermeneutic-phenomenological approach. Three themes described the carers’ effortful quest to understand their loved one’s experiences while maintaining their relational bonds. Carers described psychosis as incomprehensible, seeing their loved one as incompatible with the shared world. To overcome this, carers developed hermeneutic ‘mooring points’, making sense of their loved one’s unusual experiences through novel accounts that drew on material or spiritual explanations. The findings suggest that informal carers resist biomedical narratives and develop idiosyncratic understandings of psychosis, in an attempt to maintain relational closeness. We suggest that this process is effortful – it is hermeneutic labour – done in the service of maintaining the caring relationship. Findings imply that services should better acknowledge the bond between carers and care-receivers, and that more relationally oriented approaches should be used to support carers of people experiencing severe mental health problems.
KeywordsHealth(social science)
Year2019
JournalHealth: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine
Journal citation24 (6), pp. 737-754
PublisherSage
ISSN1363-4593
1461-7196
Digital Object Identifier (DOI)https://doi.org/10.1177/1363459319829189
Publication dates
Online02 Apr 2019
Publication process dates
Deposited05 Dec 2018
Accepted05 Dec 2018
Accepted author manuscript
License
File Access Level
Open
Permalink -

https://openresearch.lsbu.ac.uk/item/86708

Download files

Accepted author manuscript
Love and Incomprehensibility ACCEPTED.pdf
License: CC BY 4.0
File access level: Open

  • 101
    total views
  • 306
    total downloads
  • 2
    views this month
  • 2
    downloads this month

Export as

Related outputs

‘It was like a lightning bolt hitting my world’: Feeling shattered in a first crisis in psychosis
Bögle, S. and Boden, Z. (2019). ‘It was like a lightning bolt hitting my world’: Feeling shattered in a first crisis in psychosis. Qualitative Research in Psychology. 19 (2), pp. 377-404. https://doi.org/10.1080/14780887.2019.1631418
Using experience-based co-design to improve inpatient mental health spaces
Boden, Z., Larkin, M and Springham, N (2018). Using experience-based co-design to improve inpatient mental health spaces. in: Reavey, P and McGrath, L (ed.) The Handbook of Mental Health and Space: Community and Clinical Applications Oxford Routledge.
Picturing ourselves in the world: Drawings, Interpretative Phenomenological Analysis and the Relational Mapping Interview
Boden, Z., Larkin, M and Iyer, M (2018). Picturing ourselves in the world: Drawings, Interpretative Phenomenological Analysis and the Relational Mapping Interview. Qualitative Research in Psychology. https://doi.org/10.1080/14780887.2018.1540679
Terror and horror: Feelings, intersubjectivity and ‘understanding at the edges’ in an interview on a suicide attempt.
Boden, Z. (2017). Terror and horror: Feelings, intersubjectivity and ‘understanding at the edges’ in an interview on a suicide attempt. in: Pompili, M (ed.) Phenomenology of Suicide: Unlocking the suicidal mind Springer.
Exhausted without trust and inherent worth: A model of the suicide process based on experiential accounts
Benson, O, Gibson, S, Boden, Z. and Owen, G. (2016). Exhausted without trust and inherent worth: A model of the suicide process based on experiential accounts. Social Science and Medicine. 163, pp. 126-134. https://doi.org/10.1016/j.socscimed.2016.06.045
The impact of participating in suicide research online.
Gibson, S, Boden, Z., Benson, O and Brand, SL (2014). The impact of participating in suicide research online. Suicide and Life -Threatening Behavior. 44 (4), pp. 372-383. https://doi.org/10.1111/sltb.12082
Varieties of self-disgust in self-harm and suicide.
Benson, O, Boden, Z. and Vitali, D (2014). Varieties of self-disgust in self-harm and suicide. in: Powell, P, Overton, P and Simpson, J (ed.) The Revolting Self: Perspectives on the Psychological and Clinical Implications of Self-Directed Disgust London Karnac Books.
Understanding More Fully: A Multimodal Hermeneutic-Phenomenological Approach
Boden, Z. and Eatough, V (2014). Understanding More Fully: A Multimodal Hermeneutic-Phenomenological Approach. Qualitative Research in Psychology. 11 (2), pp. 160-177. https://doi.org/10.1080/14780887.2013.853854
Understanding treatment non-adherence in schizophrenia and bipolar disorder: a survey of what service users do and why.
Gibson, S, Brand, SL, Burt, S, Boden, Z. and Benson, O (2013). Understanding treatment non-adherence in schizophrenia and bipolar disorder: a survey of what service users do and why. BMC Psychiatry. 13 (1), p. 153. https://doi.org/10.1186/1471-244X-13-153